We formed the Down Syndrome Society of the Susquehanna Valley to promote Down Syndrome awareness in our community. Our son Eric was born with a surprise diagnosis of Down Syndrome and when we looked for community support to help us navigate through the first few months, we didn't find much. Everything from what Down Syndrome was and what changes it meant could only be found online or in a book. Personal contact with others was what we needed. To know that we weren't alone from people who have gone through this shock would have been very helpful. Not everyone has the support of a loving family and church like we did. With their support and prayers, we got through and now we want to help others do the same. Eric had several other complications like most Down Syndrome kids do, and each one was a shock. We've been through heart complications that were minor compared to some, a week of chemotherapy at Geisinger due to his blood disorder, bone marrow tests, and multiple blood transfusions.
Eric is now 6 years old and we have all the questions and issues all parents do when it comes to keeping their child safe and how school is going to go. Eric is in a two day a week preschool and is doing well. He is still mostly nonverbal which makes it very hard to know what he needs. Outside is a major issue because we live near a major road and Eric doesn't understand the danger. Medically he is doing better, but there are still lots of check-ups and reviews of his blood work. There may be more complications in the future, but with faith and community support, we will continue forward. If we can help others families with their questions & problems, then the DSSSV is a success!
We can only exist through donations and fund raisers. If you would like to donate we would really appreciate it! All donations are tax deductible and we are in the process of completing the tax exemption form from the IRS (26 pages and $850 fee, yikes!).
We would welcome the opportunity to find local families and individuals who know someone with down syndrome. Bringing awareness of how awesome kids are with Down Syndrome and how they love to be included in EVERY event is also very important to us. If only we could all see the world the way they do, it would be a better place!
509 W. Market Street
Beavertown, PA 17813
24 hours a day, 7 days a week! Parenting never takes a day off!